Filmmaker 

XLH UK commissioned four videos to provide an understanding of the impact XLH has on people's quality of life. The videos have also been used to campaign for better access to vital medication and build awareness and understanding of the condition outside the community.

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Independent filmmakers and researchers, Joe Bonnell and Rachel Lewis, have worked with volunteers to produce accessible and thought-provoking videos, building report with individuals and families to understand their unique experiences of the condition.